Two things which haven't gone away, and bugging me greatly are: For now though they cant give me any anti inflammatory meds because I am too close to surgery and I cant take anti inflammatory meds prior to surgery. Over the course of 2 years or more I've been from Doctor to Doctor including my family doc, allergist, gastronologist and orthopedic specialist. Ylinen J, Kautiainen H, Wirn K, Hkkinen A. J Rehabil Med. government site. Again - very minor things that don't inhibit me from doing what needs to get done. Waiting on that was probably the worst part, as I felt like I had been released from a jail sentence (I've never been in jail but I assume it's like this) but not being unlocked from the cage. Anyway this is what is going on now. I also received some stitches on nerves inside. The ThyCa: Thyroid Cancer Survivors' Association Support Community connects patients, families, friends and caregivers for support and inspiration. It sucks a bit, but plenty of people have totally fine experiences with no long term complications. I had a lot of other questions, but those two were, at the very least, on the top of my list. And mostly, please, pass it forward after you have your surgery. Ask to be checked with a Geiger counter to determine when you are safe to be around your family. I have been drinking a lot more water because of the dry mouth condition and always wake up with an extremely dry mouth. Even one of the nurses asked if I'd had the midazolam yet and the anesthesiologist said, yes. The site is secure. Difficulty swallowing. It has been 3 weeks today since his surgery and he is experiencing these symptoms. Was in Hospital 5 days post op with JP drain and limited help, had numerous asthma attacks due to not being able to eat and acid reflux. Have a wonderful holiday season and thank you again so much to this board for existing. The terror at night is gone, I'm feeling calm and back to myself. This cancer also caused me to put radiation through my entire body possibly damaging me AND my family. Do to how well the first surgery I was not expecting any problems although I am always nervous about surgery. I feel very lucky. After about a week or so, the pain was intermittent. As an example, one surgeon said he wouldn't do the surgery without intraoperative nerve monitoring of the recurrent larynegal nerve and the other said he thinks it's a waste of time to use the nerve monitor. I have heard some things from Dr's here I question a little bit (As I told some people before no low iodine diet was ever recommended etc although I did a 5 day extreme low one so . ). I don't exactly have problem swallowing, but when I do, it feels as if some one is lightly-moderately pressing my neck. 2. The two most common early complications of thyroid surgery are hypocalcemia (20-30%) and recurrent laryngeal nerve injury (5-11%). Surgery was over at about 8:15 and they decided to keep me overnight because my calcium levels wouldn't be back until way late. There they did a strep test (I'd had a sore throat off and on for a year) and a ct scan. I sound much better now but I do speech therapy constantly to improve strength (I'm a speech path so I knew what I needed to do), dry needling and physical therapy on my neck. Every now and then my salivary glands hurt a bit massaging them helps. We also scheduled appointments for me with the same nutritionist that S. has been using for her weight loss. I then asked if I could have something more substantial and the doctor came in and looked at my plate (which looked like an animal had been fed at the zoo) and said I could have whatever I wanted. The Effect of Head-Neck Stretching Exercises After Thyroidectomy on So, I was really getting insistent that he go home. My LMT said I can thank the virus. I was told I would be having surgery in mid-October and it was not able to be scheduled until November 23. The possible causes of Horners syndrome after thyroidectomy are surgical damage; postoperative hematoma compressing the cervical sympathetic chain; ischemia-induced neural damage caused during lateral ligature on the inferior thyroid artery trunk; lateral retractor stretching of the cervical sympathetic chain; damage to the communication between the cervical sympathetic chain and the recurrent laryngeal nerve during its identification; and the possible anatomic variation in which the recurrent laryngeal nerve gives off a communicating branch to the cervical sympathetic chain. The doctor says it might not ever be the same. The pain got less and less little by slow. So not going to lie, recovery from that absolutely sucked for about 10 days - lots of dizziness, tiredness, general throat and neck pain and uncomfortableness - and I didn't get my drains out for 2 weeks post surgery, which was another great addition to such an extensive surgery. In late November I realized I was getting mild depression and my workouts were getting harder to do and basically was running out of energy. Mid summer I saw and felt a lump on the right side of my neck. PDF Annals of Pain Medicine Case Report - remedypublications.com Hi, HHS Vulnerability Disclosure, Help And yes, after I got out of the hospital and all the heavy-duty painkillers wore off, I had terribly sharp, stabbing pain in my neck. I am usually not one to write on here because It is my husband who had thyroid cancer in 2013 & most recently a neck dissection on his right side they removed 31 lymph nodes & thankfully only 1 was cancer. I also had a total thyroidectomy in June (10 months ago) also due to Multi nodule goitre, I had many many nodes on my thyroid gland almost so many that doctors were surprised, and over a 10 year check up process initially from 4 nodes increasing to countless amounts where it was putting pressure on my windpipe, so I opt for a thyroidectomy. On the 18th of June I went back to Dr Ch., Endocrinology at Madigan for follow-up on my CT scans and to check the balance on my thyroid meds. On the 30th I had Fasting Labs for the blood work the nutritionist wanted. I am defiantly feeling much more mentally stable after I was put on Synthroid. Results: It kind of made me mad and I felt a bit taken advantage of that during a time of such crisis they were asking for payment up front. Im going to try to remember to request a copy of my medical records when I go in a few weeks to see my oncologist, but what numbers does your doctor like to keep you at? Care and Management of Voice Change in Thyroid Surgery: Korean Society of Laryngology, Phoniatrics and Logopedics Clinical Practice Guideline. Ultrasound revealed another Lymphnode near Thryoid bed that is 1.5cm (Where did that come from, could it be enlarged due to surgery? I don't know where it is. I quickly ordered mac and cheese and mashed potatoes. Have questions about navigating your Inspire support community or need assistance from one of our Inspire Moderators? A few randomized trials, mostly using inadequately validated instruments, showed significantly reduced neck pain, neck stiffness, movement disability, and need for postoperative analgesics by applying neck and shoulder exercises after thyroidectomy [8, 21-23]. After getting checked into the radiation isolation room #625, they brought me my dose of radiation 175 mCi of I-131 t1/2= 8 days. He switched my meds from levothyroxin to synthroid and I noticed a big difference the first day! 2022 Feb;15(1):24-48. doi: 10.21053/ceo.2021.00633. You might also have to take supplements after thyroidectomy to balance your calcium levels. Soooo I got in to see a new guy in my Drs practice and he referred me to an ENT the next week. However, such measures have not been evaluated by randomized controlled trial . A nurse came in shortly after that and I started an IV with a saline drip. I went to both appointments with a list of written questions. Follicular carcinoma minimally invasive (7.1 cm) I received a lot of encouraging feedback from many people on this site and would like to thank them all again. I blacked out again for a couple minutes and awoke in the recovery room asking the surgeon multiple times if he was going to do the surgery. On the 3rd of May 2010 I went up to Madigan for a scan of my body for radiation followed by my first uptake dose of radiation (RI-131 UPTAKE) 8.1 uCi of I-131 t1/2= 8 days. You are now HYPOTHYROID. The effects of the stretching exercises on the participants' neck pain and disability, neck sensitivity, pain with neck movements as well as on wound healing, were evaluated at the end of the first week and at 1 month following surgery. After surgery, you can expect some pain as your body heals. I later saw a special on TV (I don't remember if it was Dateline NBC or Front Line PBS) about hospitals getting more aggressive in seeking payments up front. Emerging from my first anesthesia experience was quite honestly like waking up from a bad alcohol blackout where you have no idea what was going on for the last few minutes, hours, days?, weeks? Second time with the larger dose was a little worse, but nothing terrible. How to Take Care of an Incision After Thyroid Surgery Active neck muscle training in the treatment of chronic neck pain in women: a randomized controlled trial. Argue with people or agree with people, agree to disagree if that's what it takes to get you through this. An official website of the United States government. Be careful. The usefulness of rehabilitation (i.e., a stretching exercise) for reducing these symptoms after surgery has never been studie On the 21st while I was in class J. was up at Madigan for some of her medical appointments and while there she picked up S. who got released from the hospital that day and took her to Sylvias house. I woke up and ate some more pretty soft food (didn't want to push it) and stayed up until about 10pm. It has been beyond informative and makes a huge difference knowing there are people out there that understand. Bethesda, MD 20894, Web Policies Complications associated are still common and 80% of patients complain of posterior neck pain. So I went on my low iodine diet (lid) for 2 weeks - I screwed up and had been using coconut milk with carageenan in it so I had to do lid for two more weeks! 5) Does the TSH suppression level really effect the possibility of spread? It makes hormones that control every part of your metabolism, from your heart rate to how quickly you burn calories. The nurse said, how was that. I slept in this morning until about 8:30 a.m. and am happy to report that I'm feeling a lot like myself. Tightness, fullness, painful neck post Thyroidectomy But, on leaving the hospital I was told to come to the doctor's office in a week for my replacement prescription. Take care everyone, and to those with surgeries coming up I wish you all the very best. Lots of people on here talk about how awful having a thyroid replacement medicine is, and that no one ever feels totally ok on it. Can it grow that fast from elevated TSH levels? I did the thyrogen shots instead of going off of my synthroid, so if you have that option, would 100% do it. They have removed most of the mole on my eyebrow and sent it to be checked for cancer. Twenty-eight patients who had undergone thyroidectomy and 28 healthy . Surgery took 6.5 hours and everything went well. My mind doesn't wander as much as it did a week ago, and I have a really great appreciation for everyone that cared for me, checked in on me, and helped me in any way through this. I am still having the constant dry mouth and the metallic taste is still annoying. He currently thinks they are looking good at the level I am at and wants to wait till December before he adjusts them. Tomorrow I have my 1 week post op appointments with both the surgeon and the endocronologist. Numbness or tingling of fingers, toes, or around the mouth. The stretching exercise group learned the neck stretching exercises immediately after total thyroidectomy. Stretching exercises to reduce symptoms of postoperative neck discomfort after thyroid surgery: prospective randomized study. I had a total thyroidectomy last week. My wife took my kids up to her parents in Wisconsin and my mom stayed with me in Chicago. Please enable it to take advantage of the complete set of features! I was also very coherent and cognitively feeling much better. I am hoping against hope that I can build my endurance with regular exercise. 30 Nov 2011 Official Retirement from Navy. This is normal and will gradually get better as the wound heals. Four weeks after her surgery, the patient presented to our clinic. Monday the 22nd at Madigan they gave me valium to go with the oxycoton didnt really help the pain I just didnt care about ANYTHING Tuesday night I started the antibiotics (1 day early) and by Friday the 27th the pain was back to where I only needed Tylenol. mcg of synthyroid. I was also informed when they removed my thyroid there was a parathyroid gland in each of the thyroid sections removed (so I have 2 of 4 parathyroid glands removed as well) this is probably why I had minor problems with calcium and magnesium levels. I then had to kill another 5 or 6 uncomfortable hours though waiting for the ICU doctor to finally finish my paperwork so I could go home. It's not completely numb but the inside feels like muscle / skin is falling asleep or 'thick' (not sure if i describe them properly). Our patient has a persistent Horners syndrome 4 years after her thyroidectomy. A postoperative neck ultrasound conducted in the clinic did not show any suspicious nodes, masses, hematoma or collection that could potentially compress the sympathetic trunk. When, my partner got there, I asked him to get me a towel (it's amazing how much more I'll ask for through someone else rather than on my own I don't know if I'm the only one that way) and to wipe my back off. I had a soft CT scan of neck from ENT and showed clear in October 2018. Is RAI 90MCI enough to take out 2 lymphnodes? Post-op is a bit of a blur. He got out the floor roll to start working on my leg muscle as well man that hurts. Keep in mind that a good history and physical examination are beneficial for early diagnosis and education of the patient with this complication. I'm still a horse. We watched tv and I prepared to watch the Monday Night Football game (pretty much normal for me). My time in the ICU was unpleasant, but only because I wasn't able to get any sleep the night before my surgery and the night I was there. Although, I highly recommend going somewhere where you can be alone (not a hotel). This was an amazing surgery within seconds of becoming conscious I noticed how loud everything was. Some people experience short-term side effects after thyroidectomy, including the following: Neck pain: You may experience pain on swallowing or breathing for several days following surgery. An observational case-control study was carried out. For the first 14 days I showered from the armpits down and washed my face and hair in the sink to keep the stitches and steri-strip dry. Complementary and alternative therapies for back pain II. I was a bit hysterical as it common to do TTs on children as early as 1 year of age with MENS. Then, they hit me with propofol and the lights went out. The surgery went well and the next day I was released from the hospital to recover. So today I began seeing a new primary care doc (because of new insurance) and asked if she'd feel ok with managing my thyroid stuff, and she agreed to. 1) When can I start running and exercising? Both surgeons recommended almost the exact same treatment plan. In January I was beginning to have a hypersensitive gag reflex. They did look at the CT scan report and told me that all the radiation was in the neck and that was a good thing and the scan looked clean but I will have to wait for the official follow-up with my endocrinologist on the 18th of June for the Official results. I had to cave in and take one of my remaining pain meds. Ask for prayers. When comparing neck pain and disability scale (NPDS) scores, neck sensitivity and pain with neck movement before thyroidectomy, after 1 week and after 1-month time-points, it was found that patients experienced significantly less pain and disability in the stretching exercise group than the control group (p < .001). I was diagnosed with papillary thyroid cancer over the summer and received a total thyroidectomy and bilateral neck dissection two months ago. Answer: Skin laxity after thyroid surgery. Before my thyroidectomy I experienced ear pain on and off, where it felt like a sharp, stabbing pain around my left ear. However, there was no significant difference between the groups with regard to the scores at the 1-month evaluation (p > .05). Methods: That was pretty much the best thing I've ever eaten! At about 6:45pm the anesthesiologist came in, asked a few questions and said he was hoping for my surgery to start at around 7pm. Hello, Post-Operative Instructions for Parathyroid Surgery. I'm considered low risk for recurrence. I keep reading about people getting like 8 lymphnodes removed at once and 5 ending up as cancerous. Hi! Could be in the supermarket or at KFC, I have no idea. It just takes the right approach. At the end of the first week, the NPDS scores (mean [SD] = 8.82 [12.23] vs. 30.28 [12.09]), neck sensitivity scores (median [IR] = 0 [.75] vs. 2.00 [4.0]) and pain levels with neck movements (median [IR] = 0 [2.0] vs. 3.5 [5.75]) of the stretching exercise group were significantly lower than those of the control group. On the 9th of September I had an appointment with my PCM and he confirmed I still had a major ear infection and gave me different antibiotics for it. My voice was also severely affected but it got better with exercising. My wife went home to take care of our kids and my mom came in for a couple hours. The first time I did it at 75mCi and the second time at 200mCi (lung nodules don't seem to uptake which is annoying, so we tried to hit them with a bunch). The type of pain that you will feel greatly depends on the kind of surgery you've had. My experience with thyroid cancer- so far: Anyway - I am still alone in hotel away from Family after RAI. I started exercising 6-8 weeks after the surgery and realised I feel breathless much easily and if I exert too much, there's a slight pain on the upper left side of my neck. National Library of Medicine I asked if I could turn my head (I have no idea why I asked if that was OK, I just did) and I was told, If you can tolerate it. Hi to give you a little history, in Feb 2014 I found a nodule on my right side of my thyroid byopsies and scans done I was told it was fine nothing to worry about 1 month later I get a pain on my right side scan done I have a nodule on my right overy the advice given at the time wad to remove the right overy but it was my choice as to whether or not I would opt for both to be removed this was a tough choice as a radical meopause was to follow I was 48 at the time however this is where things get very interesting on the Tuesday before my overy removal I ruptured a ligament in my left ankle this was in June op put off until cast off and I was walking around log story short did op in late August and nodule was gone I was delighted and very relieved and thanked god for my lucky escape I'm self employed and I had never been incompassatated before off I went to take control of my life again my ankle never fully recovers I have a cronic pain in I'm neck with tingling down my right arm visited my GP regulary who's best advice was to have an anti depressent which I refused went to a chiropractor as a last resort she was excellent she saved my soul on the spot she told my I needed an mri and an appointment with a nurosurgen immediately 2 weeks later I meet my nourosurgen and I have a very serious condition since I had rip tured my ligament I had also injured my c5 c6 cervical spine and needed to be operated on straight away but my nourosurgen wanted to know who was looking after my thyroid no one was as they had said it was nothing to worry about saw another surguen mor scans mor byopsies the long and the short of it was I had neck surgery in june 2015 right thyroidectomy September 2015 I had micto papillary carcinoma because it was micro no treatment was deemed necessary I had put on alot of weight and thankfully I started to loose it fast forward six months to frebruary and my husband say that lump is growing again I hadn't even noticed myself more scans more byopsies more doctors I have a new nodule in my left side byopsie was incunclusive Doctor wanted to do surgery in may I refused he suggested July I refused again I couldn't face another Summer like the last 2 surgery done on the first of September no results yet as I'm not seeing my surguen until 5th of October I'm hoping this is a good sign so I had 3 ops in less then a year in the same neck area I'm in alot of pain that's from my disc fusion my thyroid area is just very tender I'm taking eltroxin 75mg calcichew and magnesium daily nows the thing I eat very healthy I'm still putting on weight I have very little energy I can cook a good dinner but that is about all I have no interest in work or am I even thinking of going back I have developed a pain in my back teeth very annoying I have a pain in my tight hip (where it all started) and now I'm afraid I may have another nodule on my overy I'm afraid to visit my GP my question is this they are fairly sure these nodules are estrogen fueled but they won't do anything to supress it and this has me worried are they going to do more treatment I don't know I think I would prefer if they did because knowing my luck I will get another nodule on the remaining tissue anyone have any ideas Ear surgery went well on the 19th I started getting my hiccups and those lasted 7 days I did manage to get an ear infection on Friday Aug 20 and by Sunday evening I was at max allowed pain meds and it wasnt helping. I remember my throat hurting pretty badly. Federal government websites often end in .gov or .mil. Went to Bremerton naval emergency and they put me on oxycoton and told me to go to Madigan on Monday I was sweating pretty badly and was given anti-nausea medication (it really wasn't that bad to be honest). 4) They plan to suppress my TSH which will make me Hyperthyroid. Unable to load your collection due to an error, Unable to load your delegates due to an error. Removing lymph nodes in the neck (lymph node dissection). This is very long and is intended for people new to the group who haven't had surgery yet. I also am a side sleeper and had trouble getting any rest whatsoever. He also set me up with some Blood tests and put in the recommendation for a full Sleep Apnea study in Silverdale.